Daily/Weekly Thoughts

Thank You: Day 5 here we come!

Update 5:22 p.m. PST

Around 4 p.m. Emmett was intubated. It went well. While we were hopeful that this could be avoided, it is better to happen now rather than in a crisis moment in the middle of the night. Our fear is that Emmett, whose lungs are already weakened from SMA, would not be able to breathe unassisted after he recovers from this RSV virus. Alisha and Josh have received very reassuring medical opinions that Emmett will be able to breathe on his own after the tube has been removed. In fact, they will be encouraging Emmett to breathe himself even while being hooked up. It also means that Emmett no longer has the mask on.

Continue to pray for Emmett. He is Alisha and Josh's darling little two year ten and a half month old little boy.

Update 12:45 p.m. PST

Emmett is certainly doing better today than yesterday. Phew. 

He is argumentative! He is talking and expressing himself ... a little bit. He is moving his arms about. During rounds this morning the physicians are thinking that last night was the low point and that he's on the way up. This is certainly what we hope he is experiencing.

Emmett is a fighter. And we see it.


Morning Post:

Thank you so much for your prayers and support. 

Emmett just had a chest x-ray and his lungs clearer than they were last night. He is still breathing with bi-pap support so there has been no invasive procedure. Obviously, the next 24 to 48 hours are going to be challenging.

According to a text from Alisha and Josh, his oxygen levels are better than yesterday. He still has very rapid breathing. His heart rate is still fast. And even though he is getting sedation via an IV, he's still not sleeping well.

We will try to update the blog through the day ahead.



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