Daily/Weekly Thoughts

The BC Rainstorms - from Emmett's Back Yard!

Rain has been a serious topic of discussion in BC all fall. You might remember Emmett's October entry into weather reporting. If not, you can see it here.

BC has just finished a third 'Atmospheric River' in less than 2 weeks - and this is after one of the wettest fall seasons on record. Blog readers will remember that our October camping trip was almost entirely drenched in rain. We didn't have this rain gauge up and running for the first atmospheric river. The second one that hit was coupled with high winds and that toppled the rain gauge. But we captured the most recent one (for the record, the first was the worst, the second was not good but it was not as bad as the second one. These weather updates focus on this most recent atmospheric river. By the way, atmospheric river is a term coined in the 1990's although it's really come to everyones' attention this year.

Literally a ton of rain falling in a 24 hour period - and this has been happening over and over again - has been what has devastated BC. In Emmett's words, "Grandpa Roger and Grandma Rhonda live on a mountain that has been turned into an island.", that is because the roads to their home were literally under more than a metre of water.

Some have asked how we are and that is greatly appreciated. Our homes and families are safe. The Sumas Prairie flooding is about 3 kilometres from us. The elevation in those areas is approximately 1 metre above sea level. Emmett's family live at elevation levels from 40 to 50 metres above sea level. We also live on relatively level ground thus are not at risk of mud slides - which have been devastating in the mountain areas throughout BC. The trans Canada highway at Abbotsford has been underwater. Mud slides, washed out bridges and roads, and flooding has literally caused the evacuation of complete cities and the complete disruption of all road and rail traffic to the West Coast. For us, we move on relatively normally. But we have friends who have lost everything. BC is under a state of emergency.

We hope that this helps you understand a bit more about the floods in BC - an internet search will provide many more shocking details.

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Canuck Place Goal Met; Let's Keep Going! (And a bit more of the Special Project is revealed!)

Emmett's Goal of $1000 has been met and surpassed in the first seven days - the current total is $1375.00. This Canuck Place Fundraiser held by the Orange Hippos is going on to December 10th; do you think that it is possible that we might break through the top of the thermometer! Maybe even exceed last year's total of $1900! When you donate today, your contribution will support kids and families at Canuck Place. And, if you donate before Nov. 30, your gift will be tripled thanks to Canuck Places' generous matching sponsors LMS Reinforcing Steel Group and friends, Nicola Wealth and friends and Coromandel Properties.

In our last post we shared some of the woodworking details that Emmett and I have been doing. Today, the next part of the reveal let's you see some of Emmett's art - you'll have to watch the video to see the Special Guest Artist that Emmett invited to help out! (Well, if you keep scrolling you'll see the special artist too!)

That's right! Theodore helped paint!
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Baby Theo painted the Star! Unlike Emmett, Theodore loves getting his hands dirty and he was right into this painting activity!

 

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The Orange Hippos Are Fundraising for CANUCK PLACE!

Who are the Orange Hippos?

Well, Emmett is the Orange Hippo and everyone who supports him is part of his Orange Hippos' team!

2021 has been a year that western Canada, BC specifically, won't forget for years to come. Not only the second year of the pandemic with many restrictions, but summer saw an extreme heat wave hit which was followed by extreme forest fires. Then this November an extreme atmospheric river dropped over 150mm and more over our province which led to extreme flooding, mud slides, and the west coast being cut off by land (road and rail) from eastern Canada.  There is a lot of turmoil and concern - and there is no exaggeration in the multiple use of the word 'extreme'.

Emmett is Fundraising for Canuck Place. Who is Canuck Place Children's Hospice? This organization is there for families when they are overwhelmed by the extreme medical needs that a child in their family is facing. That is how we met Canuck Place. In 2015 Emmett was newly diagnosed with Spinal Muscular Atrophy, Type 1, by specialists at BC Children's Hospital and we were introduced to Canuck Place. And we've continued our involvement with Canuck Place and we appreciate having an opportunity to give back a little bit to them. There are two locations: one in Vancouver just minutes from BC Children's Hospital and one in Abbotsford.

Emmett welcomes you to join his fundraiser for Canuck Place. On the very first day, Emmett had raised $275. Now after just a few days Emmett is at $700 and very close to his target of $1000. Every dollar donated by November 30th will be tripled by matching donations.

Want to join the Orange Hippos? Well, you're already an Orange Hippo because you're reading this. If you'd like to support the many children and families who are supported by Canuck Place Children's Hospice, you can click here to make a donation: https://my.canuckplace.org/orangehippos

Emmett and I are working on a special project that will be given to one person who makes a donation to Canuck Place. Stay tuned! Emmett has a lot of work ahead of him - in this video Emmett is supervising my work.

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Number 22

Edit: Emmett's 22nd lumbar puncture went well. He's at home now and looking forward to a normal day of school ... and rain!

 

It's October and it is time to focus on videos for this blog. So Fasten your seatbelt and click the links. And if you're wondering about the title "Number 22", keep reading. The focus on this issue of our blog is upon the joy that Emmett finds throughout his life. The joy that he shares with everyone around him! He is an amazing six year old and, like many of you, we absolutely find him to be our inspiration. Emmett's videos are of three of his favourite hobbies - Soccer, Horses, and Camping.

Why Number 22?

On October 27 Emmett will be getting his 22nd lumbar puncture and dose of the drug Spinraza. The focus of this drug was to stop the regression that was happening to the recipients' body. At 6 months of age Emmett was limited to slight movements of his right arm and turning his head from left to right. He could not sit up, lift up his head, and was having issues swallowing - to mention a few of the challenges he faced. All because Spinal Muscular Atrophy Type 1 was shutting down the pathways between his brain and his muscles; the result being that his muscles atrophied. Spinraza provides an alternate route - and we have said many times before that not only has it stopped the regression but it has reversed it. It isn't as good as the original because by the time Emmett received this treatment the path was too deteriorated to recoup everything. We have seen some really incredible results in infants who have received the drug at just a few days of age. And now there are two other drugs that are available - which is incredible because when Emmett was diagnosed in 2015 there was not a single treatment available. These videos show Emmett participating in activities that prior to the introduction of Spinraza in 2015 would have been virtually impossible for someone with SMA Type 1. This 6 year old boy works incredibly hard to do what he does. And he has so much fun and such an incredibly optimistic outlook. And we are so blessed with his medical team, his family, and his friends. We are so thankful!

BTW, Emmett knows that he needs the "POKE" but he do not be mislead into thinking that it is all smooth sailing. He intensely dislikes it.  If you're thinking about Emmett and the "POKE", send him a message by responding here or on FaceBook! We will probably read all of the comments for a reading class. And then add up all of the comments for a math lesson. And if you list your location then we'll look up all of the locations on a map!

 

and here's an old horse video that you may enjoy!

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Guest Comment 1 month ago
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Hi Emmett. This is Uncle Greg from Listowel, Ontario. Aunt Mary and I want you to know that we love ❤️ watching your videos. Soccer, horses, camping even finding Eeyore’s house. Wow. So amazing to see all of the special things that you do and the different (and very cool) places that you go to visit. In a few days is ‘Number 22’. We will be praying for you and thinking of you all day.
Guest Comment 1 month ago
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Dear Great Nephew Emmett! You are a Brave Boy! Number 22 POKE! It HURTS but then it helps. Great Uncle Bob and myself Great Aunt Janice are praying for you! I am your Grandpa's younger sister, like Theo is your younger brother but I am bigger than Theo! God is with you! God will give you the strength and help you be brave and strong. Soccer looks like so much fun with friends. Fiona is a friendly horse to ride and to feed orange carrots. We live in Newcastle, Ontario Canada. Your Grandpa used to race his racing car at Mosport just north of us. Now it is called Canadian Tire Motorsport Park. Grandpa can show you pictures of racing his car at this racetrack. I rode around the racetrack with him in his race car picking up pylons one time. Your Aunt Katie raced at this racecar track too. She was a very good driver and won! Grandpa can show you a newspaper article about her being the best female racecar driver. Hope you have fun looking at the map where we live. Uncle Bob has a big garden but our orange carrots were very small and funny looking. We had big tomatoes called Beefeater! We also had corn, lettuce, beans, peas, squash, onions, potatoes, stinky garlic, raspberries, strawberries, blackberries and rhubarb. We will be thinking of you and praying you have a good day at the hospital. Jesus loves you and will be with you! We love you too! Love
Guest Comment 1 month ago
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Hi Emmet! My name is Erin. Your mom was a good friend to me in university, at CMU. We learned a lot together—your mom is smart and a hard worker, which you probably already know!I love hearing about your journey. You are an amazing kid, Emmet! The videos are fun to watch.Also, congratulations on becoming a big brother!I like praying for you and your family. Keep being brave and kind!
Guest Comment 1 month ago
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Hi Emmett. My name is Sharon and I am a friend of your grandfather Frank, I live in Toronto. I was with your grandfather the very first day that he started teaching! I watched him doing great experiments with his grade 6 students, moving on to other grades in our board, becoming a vice principal, principal, becoming obsessed with Mr. Potato Head, getting older, retiring…and moving away to spend time with You. Wow, that’s a long time.🥳And now you can teach him how to score in wheelchair soccer, how to make a better cardboard boat, how to ride a horse without falling off, and how to be a really good big brother. Boy, he has a lot to learn, good luck!
Guest Comment 1 month ago
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Sweet Emmett your cousins (Pixie, James, Jakob, Toby and Ava wll all be thinking of you and praying for your 'Number 22".
Guest Comment 1 month ago
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Hi Emmett, I met your Grandpa at Lexington Public School in Waterloo, Ontario and that’s where I live. He was a great principal to work with. I really enjoy watching your awesome videos! You’re developing some good soccer skills. I wonder if driving your wheelchair and keeping track of the ball takes a lot of concentration? You’re very lucky to have Fiona to ride! I LOVE horses but I’m very allergic to them. When I’m near horses, or even someone who’s been in a horse barn, my eyes swell up and I have trouble breathing, but I have inhalers to help me feel better. Your camping trip sure was adventuresome but wet🌂🌧. I enjoyed listening to your newscast, featuring the weather forecast! It hardly seems fair that your Dad and Grandpa make you take out the stinky garbage. Maybe if you use “puppy dog eyes” you can convince them that you’re too young for such a smelly job! You’re upcoming Poke doesn’t sound so fun👎🏻. I’ll be sending you good thoughts that it’s not too ouchy and that you get a special toy for being such a brave and amazing boy! Maureen from Waterloo
Guest Comment 1 month ago
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Hi Emmett, I'm a friend of your grandpa, Frank. I live in Waterloo. You are a very active guy. I've been watching these videos and reading many of the Facebook posts about your many activities. I used to go camping when I was younger and I liked it a lot. It looks like you enjoy it too! You're with some pretty nice people. I wasn't very good at riding horses or soccer, but it does look like fun. I look forward to watching more videos of your activities. Thanks for sharing.