A huge thank you to the Getty Owl Foundation. Emmett's name was submitted to an online give-away specifically for families dealing with Spinal Muscular Atrophy. The Getty Owl Foundation was started by parents of a little girl who has SMA - what a fantastic outreach and global service they are providing.
They realize that families with children with SMA are tied to their medical equipment - effectively tethering them to their power source. Alisha and Josh were certainly not sure what their summer would look like. If you know them, you know that hiking and camping in the B.C. mountains is a big part of their life. They knew that a little one would change that, but with Emmett's complex medical equipment it just couldn't happen apart from very short excursions.
Then they saw this give away for a back-up power system to be able to greatly increase the tether. And they are one of six lucky families to receive a battery/inverter system and a getaway quilt to allow them a greatly expanded movement range. We so appreciate the practical way that Getty's family is reaching out to help other families.
Emmett is fortunate in so many ways with his medical care and the great supports available to him in our wonderful province of British Columbia. As Getty's parents point out, there are many out of pocket expenses that add up and are a burden. This device is one that we've talked about but just was not going to happen. And now it has!
Getty Owl Foundation - You Rock!