I Cannot Believe It!
Thursday, June 02, 2016
Literally, I cannot believe it! Emmett has never been able to support his head and yet, over the past month, we have seen him demonstrating neck muscle strength that we have never seen before. From tummy time as a three month old right past his first birthday. Then at the end of April, while reclining on his mom's chest, he lifted up his head to look at her. And now what you see in this video clip, taken on May 31st.
That's just incredible.
Worried that Emmett hasn't had a new balloon for a bit? That's because we haven't shared this awesome sea turtle balloon that Emmett has been playing with for the past couple of weeks. It's pretty cool!
Emmett still loves his Jolly Jumper! And his posture is so much better than a few months ago.
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Guest Comment 1 year ago
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Amazing to see Gods answer to prayers! We pray for you guys every night!
Guest Comment 2 months ago
Site Visitor


Hello! I am a pharmacy student at Wingate University in North Carolina, and I am actually working on a presentation for Spinraza for SMA, which I will present in a few weeks. It sounds like Emmett was in the two clinical trials that I will be presenting on. Is it okay if I include some of your stories, pictures, or videos in my presentation? I would love to be able to give my audience an idea of how these babies in the clinical trials are doing now that it is over. Thanks!
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