We All Cry Together! | Daily/Weekly Thoughts
Daily/Weekly Thoughts

We All Cry Together!

Three of Emmett's friends have left this world in the last month and a half. We are crying for these little ones, their parents, families, and friends. 

Emma

February 2, 2015 to December 25, 2015

 

Addison

February 2, 2015 to February 3, 2016

 

Atticus

November 25, 2015 to February 6, 2016

 

The twins - Emma and Addison - plus Atticus are Emmett's soulmates. Together they shared the diagnosis of the terrifying genetic disease - Spinal Muscular Atrophy, Type 1. They and their parents were occasionally at BC Children's Hospital at the same time as Emmett, Alisha, and Josh - sharing the heart aches, the highs, and the lows. Sharing together on FaceBook the struggles to stay awake through the day after nights of little or no sleep. Sharing ideas for toys and making plans for play dates. Parents separated by distance yet with a connection created by this disease. Talking about the joys of parenting medically fragile children. Knowing at times the despair of parenting medically fragile children. Parents struggling with a diagnosis that turned their world upside down and inside out. Parents grasping at the possibility that an experimental drug trial offered hope. Yet knowing that not all babies in the trial would get the real drug. Or even if this so called miracle drug would provide the miracle that we all want! Parents struggling to make sense of a world where beautiful babies can be born with a disease that not only takes their ability to move away, it takes their breath away.

Right now, we are all crying. It is not fair. These three angels have left us far too soon. 

Comments

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Guest Comment 1 year ago
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So very sad! We are praying for all of you for the Lord's comfort to be with you and all your friends' families in their grief and praying for a miracle of healing for little Emmett and all the babies with SMA. Love Uncle Bob, Aunt Janice and Abbott Cousins XOXOXO
Guest Comment 1 year ago
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Pam I am thinking about you all and praying for little Emmett Mary Somerville
Guest Comment 1 year ago
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We shed tears for these little ones and their families who we have never met and continue to pray without ceasing for all of you. Emmett, Josh, Alisha, Frank, Pam, Katie,
Guest Comment 1 year ago
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The Wilms Family and all the families who have endured the heartache of losing their little ones. All our Love and Prayers Uncle Rob, Aunt Barb
Guest Comment 1 year ago
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Our hearts weep for those families. We continue to pray for Emmett and you all. Love, Uncle John, Aunt CarolAnn