Three of Emmett's friends have left this world in the last month and a half. We are crying for these little ones, their parents, families, and friends.
February 2, 2015 to December 25, 2015
February 2, 2015 to February 3, 2016
November 25, 2015 to February 6, 2016
The twins - Emma and Addison - plus Atticus are Emmett's soulmates. Together they shared the diagnosis of the terrifying genetic disease - Spinal Muscular Atrophy, Type 1. They and their parents were occasionally at BC Children's Hospital at the same time as Emmett, Alisha, and Josh - sharing the heart aches, the highs, and the lows. Sharing together on FaceBook the struggles to stay awake through the day after nights of little or no sleep. Sharing ideas for toys and making plans for play dates. Parents separated by distance yet with a connection created by this disease. Talking about the joys of parenting medically fragile children. Knowing at times the despair of parenting medically fragile children. Parents struggling with a diagnosis that turned their world upside down and inside out. Parents grasping at the possibility that an experimental drug trial offered hope. Yet knowing that not all babies in the trial would get the real drug. Or even if this so called miracle drug would provide the miracle that we all want! Parents struggling to make sense of a world where beautiful babies can be born with a disease that not only takes their ability to move away, it takes their breath away.
Right now, we are all crying. It is not fair. These three angels have left us far too soon.